Mommy's News (Issue 237)
There were a few changes today. First the doctor has started to ween Jonah’s Morphine from 5.5 to 5 even. They have also weened his INO (Nitric Oxide) from 20 to 15. At midnight it will decrease to 10 then by 2 every twelve hours. The goal is to get him on minimal amounts of INO by his next heart echo on Friday. They hope that this will enable the ultrasound tech to get a more precise measure of what is actually going on with his pulmonary hypertension. There is still talk of a heart cath. if the echo doesn’t get more specific on Friday. The Physical Therapist (PT) came in today and started trying Jonah on some formula. He did just as we suspected he might… not so great. It seems that Jonah has developed quite an oral aversion and no longer sucks nor swallows. When they put formula in his mouth he would stick his thumb in his mouth too and all the formula would end up on his sleeve. So we begin the tedious process of patiently helping Jonah relearn how to eat. So Jonah did ...