2 Brothers Layne

Today ended up being a big day for us. We went to PCMC for blood work, a cardiology appointment, and to visit with Dr. Null. The blood work only required one finger poke! The appointment with Dr. Day (the cardiologist) went well. from the looks of his EKG his pulmonary hypertension is stable. He said that the only exact way to know exactly how things are doing inside his heart is to do a heart catheter. To make a long story short, I weighed out the pros and cons and decided that I didn't feel it was worth the risk right now. The visit with Dr. Null went great! He looked at the results of Jonah's blood work and he decided that Jonah was ready to be off his Arginine Chloride!!! This is a big one (when we came home from the NICU Jonah was getting 26ml every 8 hours and now a year later he is off!) Everyone seems to be very pleased with how well Jonah is doing and that he is making so much progress! Dave made it to Columbia Missouri tonight. He has traveled 1,200 miles and...

So Dave left this morning and drove over 600 miles. He is sleeping in North Platt, Nebraska. He says that the drive was made tolerable by listening to some books on tape and he seems to be in good spirits! Jonah and I had a most enjoyable day. We went to church then we did some visiting in North Ogden with Grandma Dianne. Jonah was a riot. He was so alert and interested in Dianne's two granddaughters. There was a point at which Jonah was observing the girls play soccer outside on the lawn and after watching a few minutes he asked to play. I put him in the grass (don't worry, he had on his socks and shoes) and support his arms and it was then that he stepped toward the ball with his left foot and kicked hard with his right. I was so amazed! I it is so exciting to see Jonah pick up on new things so quickly! Jonah showing off his Cheesy grin! Just a cute picture! Dianne's granddaughter brought over some of her old toys for Jonah to play with. He LOVED this train engine ...