What a burdened day
This morning was extremely rough!!!! So rough, Grandma Raine thought Jonah was headed for a trip to the hospital. Jonah was up to 2 liters on his oxygen and only satting in the high 80's low 90's, enough that for two hours the oxygen monitor was alarming. After a nebulized treatment of albuterol, a dose of lasix, aka vitamin pee, and 4 liters of blow by (which enabled Jonah to get his blood oxygen saturations back into the appropriate range, he finally fell asleep. After Jonah woke up, dad too because Jonah was sleeping on his lap, we were able to turn his oxygen needs down, turn off the blow by, and not have another nebulized albuterol treatment. We are however getting a more and more aggitated child when it comes to the g-tube. We are leaning towards the g-tube not being long enough and causing pain in the compression sense on poor Jonahs tummy. Jonah became so aggitated with me after burping him, that I had to lay him on the floor and walk out of sight so he could calm...